Scorn Not Her Complexity (Epilepsy, My Love!)
By Konstantinos Kallimachos
Published by eAnagnosis Publishing Ltd.
Rating: Not yet rated.
Published: Aug. 20, 2012
Words: 48987 (approximate)
Language: American English
ISBN: 9789609637053
Short description
Children suffering from severe intractable epilepsy can be saved. They can lead a dignified life provided that those who love them and take care of them can also learn to love the condition itself. Originally published in Greek under the title Epilepsy, My Love, this is the story of just such a child, narrated by the parents themselves.
From a small island-state in the Mediterranean to the most renown neurological clinics in the US, little Maria-Foteine who suffers from a rare and severe form of epilepsy fights on... But she's not fighting alone; her parents are always on her side ready at a moment's notice to drop everything and take her to the nearest ER. For over six years, they've been travelling the world with their daughter looking for a way to cope with the "sacred disease" (as epilepsy was known in the Middle Ages), all the way learning how to accept and in the end growing to love it. At first, this might seem an unusual approach to what is admittedly a great handicap in life, but once someone has read and truly understood the diary of Antigone and Kostas, it all becomes clear. There is a great lesson to be learnt here; the crucible of invasion, war and life as a refugee does not necessarily spawn even more hatred. Sometimes it can give birth to a feeling of universal love.
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Tags
family, blogging, neurology, diary, parenting, epilepsy, adversity, overcoming adversity, cyprus, mayo clinic, epilepsy awareness, epilepsy in children, epilepsy disorder, severe epilepsy, ketogenic diet, severe intractable epilepsy, dravets syndrome, epilepsy monitoring
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